GRACE GRANTED LIFE–ENHANCING DRUG BY HSE, AN IRISH FIRST

18 March 2017 No Comments by The Northern Standard

By Veronica Corr

Following a two-year campaign by her parents Gráinne and David, Grace Cogan is to receive Vimizim drug to improve her quality of life.

Grace was born with a condition called Morquio, which means that her body does not produce an enzyme naturally. That is why she needs Vimizim, to help break down the sugars in her body. She is to receive this medication through the HSE in Temple Street Children’s University Hospital.

The nine-year-old lives at home with her parents and older siblings Hannah (16) and Killian (14) in Laragh, Castleblayney.

This success marks an end to the ‘Campaign for Grace,’ which has gained momentum recently.
The Cogans were fighting to have the drug Vimizim approved for use in the…
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